Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure

Anthony Solomonides, Satyender Goel, Denise Hynes, Jonathan C. Silverstein, Bala Hota, William Trick, Francisco Angulo, Ron Price, Eugene Sadhu, Susan Zelisko, James Fischer, Brian Furner, Andrew Hamilton, Jasmin Phua, Wendy Brown, Samuel F. Hohmann, David Meltzer, Elizabeth Tarlov, Frances M. Weaver, Helen Zhang & 2 others Thomas Concannon, Abel Kho

Research output: ResearchConference contribution

Abstract

CAPriCORN, the Chicago Area Patient Centered Outcomes Research Network, is one of the eleven PCORI-funded Clinical Data Research Networks. A collaboration of six academic medical centers, a Chicago public hospital, two VA hospitals and a network of federally qualified health centers, CAPriCORN addresses the needs of a diverse community and overlapping populations. To capture complete medical records without compromising patient privacy and confidentiality, the network created policies and mechanisms for patient consultation, central IRB approval, de-identification, de-duplication, and integration of patient data by study cohort, randomization and sampling, re-identification for consent by providers and patients, and communication with patients to elicit patient-reported outcomes through validated instruments. The paper describes these policies and mechanisms and discusses two case studies to prove the feasibility and effectiveness of the network.

LanguageEnglish (US)
Title of host publicationStudies in Health Technology and Informatics
PublisherIOS Press
Pages584-588
Number of pages5
Volume216
ISBN (Print)9781614995630
DOIs
StatePublished - 2015
Event15th World Congress on Health and Biomedical Informatics, MEDINFO 2015 - Sao Paulo, Brazil
Duration: Aug 19 2015Aug 23 2015

Publication series

NameStudies in Health Technology and Informatics
Volume216
ISSN (Print)09269630
ISSN (Electronic)18798365

Other

Other15th World Congress on Health and Biomedical Informatics, MEDINFO 2015
CountryBrazil
CitySao Paulo
Period8/19/158/23/15

Fingerprint

Patient Outcome Assessment
Health
Sampling
Communication
Sampling Studies
Privacy
Research Ethics Committees
Public Hospitals
Confidentiality
Random Allocation
Medical Records
Cohort Studies
Referral and Consultation
Research
Population
Patient Reported Outcome Measures

Keywords

  • Aggregation
  • Comparative Effectiveness Research
  • Consent
  • Data Collection
  • Data Linkage
  • Data Sets
  • Deidentification
  • Electronic Health Records
  • Patient-Centered Outcomes Research
  • Re-identification

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Cite this

Solomonides, A., Goel, S., Hynes, D., Silverstein, J. C., Hota, B., Trick, W., ... Kho, A. (2015). Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure. In Studies in Health Technology and Informatics (Vol. 216, pp. 584-588). (Studies in Health Technology and Informatics; Vol. 216). IOS Press. DOI: 10.3233/978-1-61499-564-7-584

Patient-Centered Outcomes Research in Practice : The CAPriCORN Infrastructure. / Solomonides, Anthony; Goel, Satyender; Hynes, Denise; Silverstein, Jonathan C.; Hota, Bala; Trick, William; Angulo, Francisco; Price, Ron; Sadhu, Eugene; Zelisko, Susan; Fischer, James; Furner, Brian; Hamilton, Andrew; Phua, Jasmin; Brown, Wendy; Hohmann, Samuel F.; Meltzer, David; Tarlov, Elizabeth; Weaver, Frances M.; Zhang, Helen; Concannon, Thomas; Kho, Abel.

Studies in Health Technology and Informatics. Vol. 216 IOS Press, 2015. p. 584-588 (Studies in Health Technology and Informatics; Vol. 216).

Research output: ResearchConference contribution

Solomonides, A, Goel, S, Hynes, D, Silverstein, JC, Hota, B, Trick, W, Angulo, F, Price, R, Sadhu, E, Zelisko, S, Fischer, J, Furner, B, Hamilton, A, Phua, J, Brown, W, Hohmann, SF, Meltzer, D, Tarlov, E, Weaver, FM, Zhang, H, Concannon, T & Kho, A 2015, Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure. in Studies in Health Technology and Informatics. vol. 216, Studies in Health Technology and Informatics, vol. 216, IOS Press, pp. 584-588, 15th World Congress on Health and Biomedical Informatics, MEDINFO 2015, Sao Paulo, Brazil, 8/19/15. DOI: 10.3233/978-1-61499-564-7-584
Solomonides A, Goel S, Hynes D, Silverstein JC, Hota B, Trick W et al. Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure. In Studies in Health Technology and Informatics. Vol. 216. IOS Press. 2015. p. 584-588. (Studies in Health Technology and Informatics). Available from, DOI: 10.3233/978-1-61499-564-7-584
Solomonides, Anthony ; Goel, Satyender ; Hynes, Denise ; Silverstein, Jonathan C. ; Hota, Bala ; Trick, William ; Angulo, Francisco ; Price, Ron ; Sadhu, Eugene ; Zelisko, Susan ; Fischer, James ; Furner, Brian ; Hamilton, Andrew ; Phua, Jasmin ; Brown, Wendy ; Hohmann, Samuel F. ; Meltzer, David ; Tarlov, Elizabeth ; Weaver, Frances M. ; Zhang, Helen ; Concannon, Thomas ; Kho, Abel. / Patient-Centered Outcomes Research in Practice : The CAPriCORN Infrastructure. Studies in Health Technology and Informatics. Vol. 216 IOS Press, 2015. pp. 584-588 (Studies in Health Technology and Informatics).
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